blog – Just Another "My DBS Journey" website

Strength

As the date of the operation gets closer I wouldn’t say I am getting more nervous but I am becoming more aware my life may change. Last week I had my pre-op MRI and this week I have pre-op assessment and signing the consensus. The change should be a positive one but it is hardContinue reading Strength

Protected: New dates, CONFIRMED

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Learning from your mistakes

The saying goes you don’t make the same mistake twice. I disagree. I have made some mistakes multiple times and still keep making them. You might consider this careless and maybe it is but I consider it part of who I am. Not sure where this fits into the current status other than it’s currentlyContinue reading Learning from your mistakes

Monday

Just think, in a couple of months, a significant part of this journey will be over and the recovery will be in progress. Saying “recovery” makes it sound oh-so serious but I don’t think it is. We thankfully live somewhere this is reasonably routine. Don’t get me wrong it is serious and a lot hasContinue reading Monday

No change

Hi, if you are still reading this Friday PM. I’m going to write this, as I think – so no change there, but in an effort to close out this week and start again for next week. It has been a strange but also normal couple of days. I have been trying to get thingsContinue reading No change

Changes

i was careless yesterday, let’s not hide the truth. While decanting and filtering into the various pots I didn’t pay enough attention to the med’s I was actually supposed to be taking. They day went well, so much so I stayed up later than usual and my sleep wasn’t bad. But today I’m not anywhereContinue reading Changes

Protected: It’s not that many

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and it’s only 6.45am!

First let me say thank you to everyone who has provided encouragement to keep this going. Thank you! Phew! That was close. Short version, I locked myself out of here. For future reference do not add pepper unless you know what you are doing. I went to bed last night with the concern (worryContinue reading and it’s only 6.45am!

Work and emotional feedback

Yesterday I did my first shift of volunteering work. It was only for 2hrs 30mins but it was a reminder of what starting a new job feels like. A reminder of how I don’t enjoy the new kid feeling. Fortunately the staff were kind and friendly, which made me feel at ease. I was workingContinue reading Work and emotional feedback

One small mercy

Being a PD nurse as well as wife, I know how badly this horrible hot muggy weather impacts most people with PD, and we haven’t had any respite for weeks now. My lot here in the South East are really suffering. So while I know his temp regulation is poor and in winters I needContinue reading One small mercy

Just Another "My DBS Journey" website

My words, as I think them and try to write them.