daily – Just Another "My DBS Journey" website

No change

Hi, if you are still reading this Friday PM. I’m going to write this, as I think – so no change there, but in an effort to close out this week and start again for next week. It has been a strange but also normal couple of days. I have been trying to get thingsContinue reading No change

Changes

i was careless yesterday, let’s not hide the truth. While decanting and filtering into the various pots I didn’t pay enough attention to the med’s I was actually supposed to be taking. They day went well, so much so I stayed up later than usual and my sleep wasn’t bad. But today I’m not anywhereContinue reading Changes

and it’s only 6.45am!

First let me say thank you to everyone who has provided encouragement to keep this going. Thank you! Phew! That was close. Short version, I locked myself out of here. For future reference do not add pepper unless you know what you are doing. I went to bed last night with the concern (worryContinue reading and it’s only 6.45am!

Work and emotional feedback

Yesterday I did my first shift of volunteering work. It was only for 2hrs 30mins but it was a reminder of what starting a new job feels like. A reminder of how I don’t enjoy the new kid feeling. Fortunately the staff were kind and friendly, which made me feel at ease. I was workingContinue reading Work and emotional feedback

Just because it’s not always

The only thing you can predict with PD is that it will be unpredictable. Last night I went to bed late, as normal. I woke up several times, as normal. I stayed up when I should of gone back to sleep, as normal. So today I was expecting to have a rough time of it,Continue reading Just because it’s not always

What motivates you – an incomplete thought

I’m not sure why but nothing really motives me. Is there a word for that? Lazy? Adolescence? I find it really annoying that I can’t motivate myself other than when I’m at work. At home, symptoms, pain, discomfort, etc don’t bother me. I’ll probably come back to this thought later.. Update Yesterday (11th August)Continue reading What motivates you – an incomplete thought

” Who would of thought? “

Good morning! Over slept this morning so already late for my first med’s. While I’m out of work not too much of an issue – I can set a timer for the interval but after not sleeping very well last night I seem to have woken with some of the discomfort I was in yesterdayContinue reading ” Who would of thought? “

No more bad days

I know it is unrealistic but I hope for no more bad days.Today has not been a bad day, in fact I’m not sure I have had a full day of misery. I am just hoping to be a bit more resistant to my poor self care. I walked just under a mile today, ifContinue reading No more bad days

” Now what? “

I suppose now I have been approved for the operation I should let you know what happens next. As I understand it I will have a telephone call to assess my mental state about having implants, surgery, anesthetic etc. Then a MRI scan which will be used to map out precisely what and where theyContinue reading ” Now what? “

The next morning

It’s the next morning, or at least nearly at least. The main things are, I am awake and I have the dopamine to give you some more feedback after the news yesterday. Yesterday afternoon I had a telephone call from my DBS consultant telling me that the team had agreed I was going to beContinue reading The next morning

Just Another "My DBS Journey" website

My words, as I think them and try to write them.