https://diary.mengosh.link/?p=34

No more bad days

I know it is unrealistic but I hope for no more bad days.
Today has not been a bad day, in fact I’m not sure I have had a full day of misery. I am just hoping to be a bit more resistant to my poor self care.

I walked just under a mile today, if my watch is to be believed, and for the most part felt fine. It’s now early evening I’m noticing my body slow down and become rigid. So, I check the time and my pill pot to see if I missed a dose. I’m not due for another hour or so but I have missed a dose. So unsurprisingly I’m now paying for my carelessness; walking too much without taking my med’s.

So here I am, slowly typing this out wondering if / when the next symptom will show itself; cramp in my leg. As it is already sore I guess I should take some med’s before it turns into cramp.

My life is still my own. I should remember to take my med’s and not over do it but I am hoping the DBS may take the edge off. It is quite a clever bit of kit – reading how my body is and telling it more or less. Which will definitely help when I’m back at work and not knowing what to expect.

Will I ever learn to take my med’s on time? We will find out.

Update Just to reassure you, I am fine. While writing this I have taken some med’s and my movement is returning. Situation normal, or at least as normal as it gets 🙂 Time for some dinner.

 

Update I have created a page “video roll” where at present I have uploaded a couple of short clips that amuse me. Maybe you will find funny, maybe you won’t. This is me sharing. If this upsets or offends you please let me know. Some photo’s and audio maybe also added soon.